Made By Us Twilight MarketBy the Royal Children’s Hospital AuxiliariesSaturday 30 June 2012, 12pm-6pmMalvern Town Hall, Malvern, Melbourne
Artists, designers, crafters, makers :: click here to find out about becoming a stallholder.
Invite your friends on Facebook.

Made By Us Twilight Market
By the Royal Children’s Hospital Auxiliaries
Saturday 30 June 2012, 12pm-6pm
Malvern Town Hall, Malvern, Melbourne

Artists, designers, crafters, makers :: click here to find out about becoming a stallholder.

Invite your friends on Facebook.

Health tip for the day :: shorten your commute

Long commutes are bad for you. Shortening yours by 20 Minutes could improve your health.

Lifehacker reports that long drives to and from work may be hazardous to your health. Besides draining you mentally and forcing you to sit for extended periods through traffic jams, long commutes are linked to less sleep, high cholesterol, and obesity.

This infographic from College@Home explains the mental and physical impact of commuting, and where traffic comes from.

Put simply, the more time you spend commuting, the more you worry and the greater your health risks—partly because sitting too much wrecks your health and also because commuting is just plain stressful.

It isn’t easy to change your commuting time, but it may definitely pay off. Shortening your commute by 20 minutes might lower your risk of neck and back pain by 14%, obesity by 20%, and heart attack by 300% (see how different commuting times affect your health in this Gallup survey).

If you can’t move or change your commute, this is just another reason to find more ways to move during the day and try to convince your boss to let you work from home.

Here’s the whole graphic.If you can’t see it below properly, click here.

Do you know anyone living with type 1 diabetes?

Did you know one in 500 young people in Australia has diabetes and it is one of the most common chronic diseases in children?

Hello everyone, Mind Over Matter Month is launching soon. This fundraising initiative supporting children living with type 1 diabetes.

During June, Mind Over Matter Month invites you to change your lifestyle and experience a daily commitment to the fullest.  By throwing yourself into a challenge you  can taste a little of the daily dedication it takes to live with type 1 diabetes. This is your personal pledge. 

Everyone who participates will make a BIG difference.

By joining Mind Over Matter Month you will help The Royal Children’s Hospital train more specialist doctors and fund important type 1 diabetes research through the Murdoch Childrens Research Institute.

Despite medical advances that have helped reduce the incidence of complications like blindness, kidney failure and cardiovascular issues, there is NO CURE for type 1 diabetes.

The more people that take up the Mind Over Matter challenge during the month of June the more funds are raised to help our type 1 diabetes patients now and into the future.

Please like our Mind Over Matter Month Facebook page here.

We would LOVE to reach (at least) 100 likes on the Mind Over Matter page by the end of the week! please pass it on!

Find out more and sign up to a personal challenge at www.mindovermattermonth.com.


MIND OVER MATTER MONTH
In support of children living with type 1 diabetes
1 - 30 June 2012
www.mindovermattermonth.com
www.facebook.com/MindOverMatterMonth

Doctors say ‘cure’ for eating disorders is a reality

Great news for the RCH Eating Disorders Program that we profiled in 2011. 

[Image via]

Young people with eating disorders such as anorexia nervosa have every chance of reaching a cure thanks to proven, intensive treatment, according to staff at The Royal Children’s Hospital (RCH).

This week, the State Government announced $3 million additional funding for the RCH Eating Disorders Program – a commitment welcomed by RCH staff and families.

Director of the RCH Centre for Adolescent Health, Professor Susan Sawyer, says the funding is a coup for Victorians, with adolescent services often overlooked in funding decisions despite the high prevalence of eating disorders in this age group.

“I’ve been working with young people with eating disorders for the past 17 years. Given the benefits of investing in curative treatments for anorexia nervosa in adolescence, we’re absolutely delighted with these new funds,” Professor Sawyer said.

The revolutionary treatment is guided by a team of adolescent and mental health clinicians whose focus is empowering parents to form a key part of the healing process.

Professor Sawyer says their ‘Family Based Therapy’ (FBT) approach has contributed to a 75 per cent drop in readmission rates at the RCH, with 97 per cent of those who complete the program recovering fully and many teenagers weight restored within six months.

“Previously, treatment failure was the norm. After many years of unsuccessful treatment, we commonly had to ‘graduate’ our older adolescents to adult services as they failed to recover. The introduction of FBT means that we now aim for cure in adolescence,” she said.

The RCH Eating Disorders Program has reduced the road to recovery for sufferers from 7 years to appox 6 months, and won a Victorian Public Healthcare Award in 2011.

Read more about the RCH Eating Disorders Program here.

Donate directly to the Centre for Adolescent Health here.

Inspiration :: Paralyzed woman completes the London Marathon in a bionic suit, and raises more than £80,000

This is an amazing story. What an inspiring woman! Highly recommended reading.

A paralyzed woman has become the first person to complete a marathon in a bionic suit. It took her 16 days to finish, but she got there.

Gizmodo reports, Claire Lomas was paralyzed from the chest down in 2007 when she was thrown off her horse and broke her neck, back, and ribs, and punctured a lung. Ordinarily, people who sustain these kinds of injuries will never walk again. Many don’t even survive.

But Lomas did. And after extensive rehab, she found her way into a ReWalk suit. The $70,000 bionic system uses motion detectors powered by an onboard computer system to do the unthinkable: Enable people to walk who can’t do so on their own. When the person wearing the outfit shifts her balance, indicative of wanting to take a step, the suit responds the way an able-bodied person’s joints would.

Which is miraculous enough for just getting around the house. But Lomas was determined to take the ReWalk on a 26.2 mile grind. Which is why she lined up with about 36,000 others on April 22nd at the start of the London Marathon. She walked about two miles each day, accompanied by her husband and 13-month-old daughter. A little over two weeks later, she crossed the finish line.

The Telegraph reports that Claire has so far raised more than £80,000 for Spinal Research, a charity which funds medical research around the world to develop reliable treatments for paralysis caused by a broken back or neck. 

Read more in The Telegraph and Gizmodo.

Image credit: Peter Macdiarmid/Getty Images

Image: Geoff Pugh

Heroic Mum’s Charity Walk Exceeds Expectations.

Heroic RCH mum Liat Harrower and the Rotary Club of Werribee have raised over $62,000 for The Royal Children’s Hospital’s Victorian Paediatric Palliative Care Program (VPPCP).


Liat and the Rotary Club of Werribee organised the 200km and friends completed the harrowing nine-day 200km Charity Walk across regional Victoria in March. Despite injuries, soggy feet and blisters the walkers trekked from North East Victoria to Melbourne starting at Harrietville and travelling through Bright, Myrtleford, Beechworth, Bowser, Tarrawingee, Wangaratta and Parkville before finishing in Werribee.


Liat organised the 200km Charity Walk in memory of her son Mitchell who was diagnosed with a rare and incurable genetic condition at only six months old. Liat cared for Mitchell until he passed away in August 2008 at the age of seven. The walk is aimed to raise awareness and funds to help support children with life-limiting conditions and their families through the VPPCP.

 
Palliative care focuses on enhancing the quality of life for the child and support for the family and includes the management of distressing symptoms, provision of respite, and care through death and bereavement. Liat describes the work of the VPPCP, which provided Mitchell with care and support during his final year, as remarkable.
“If it was not for services such as those provided through the VPPCP, it would not be possible for families to spend such precious time with their child.”


In order to raise funds and reach a collective target of $40,000 each walker challenged themselves to raise over $1000. This year the group exceeded that amount as well as their own expectations by raising just over $62,000. This is the third year that the event has been held, with last year’s fundraising efforts raising $25,000.


Liat and her team presented the funds to members of the Royal Children’s Hospital Foundation at a celebratory dinner in Werribee. The next 200km Charity Walk is scheduled to be held in October 2013.

Immunising Your Baby May Not Be So Painful After All!

Immunising a baby can be a stressful process at the best of times. Luckily we’ve heard news that the process may become less painful!

According to a report by Lucie van den Berg of the Herald Sun, recent findings by US researchers show that parents may finally be able breathe a sigh of relief when it comes immunising their baby.

A study on 234 infants aged two to four months found that five simple techniques- swaddling, shushing, swinging a child on their side or stomach, and giving them a dummy to suck- significantly relieves babies’ pain by triggering their calming reflex. Known affectionately as the Five S’s, the study found the techniques decreased babies’ pain scores and crying time during vaccinations.

The Royal Children’s Hospital immunisation specialist Dr Nigel Crawford said its dedicated drop-in centre for the hospital’s patients already used a variety of age appropriate techniques to soothe and distract patients.
“The common ones are just making the infants feel comfortable when they first arrive. The immunisations are always done in a private side room to make sure the infant and parents feel comfortable,” he said.

If you’re interested in finding out more information on immunisation for your baby at The Royal Children’s Hospital click here.

To read the Lucie van den Berg’s full article in the Herald Sun click here.

Tunstall Square Market Day

The Rotary Club of Donvale will be holding its annual Tunstall Square Market Day to raise funds for the CasKids Auxillary.

CasKids Auxiliary raises funds to purchase equipment for The Royal Children’s Hospital Emergency Department. It also supplies a wide range of books for the families and children visiting the hospital.

CasKids is known for its terrific bargains in manchester, cushions and doona covers.

The Tunstall Square Market Day will be held on Sunday 24th June, 7.30am to 2.30pm,  Tunstall Square, Tunstall Road, Doncaster

Immunisation Week - sounds nasty, but really it’s important!

Australia’s first ever Immunisation Week held from 23 – 29 April 2012 is a great time for parents to consider the vaccination needs of their children, particularly adolescent children.

Victoria currently achieves 92 per cent coverage for free vaccines given to babies and children compared to an estimated 75 per cent for adolescents.

“While Victorian parents are very vigilant about immunisation for babies and young children, we need to ensure that they are aware of the crucial vaccinations available for free in the teen years,” explained Victoria’s Chief Health Officer, Dr Rosemary Lester.

“Young people are still vulnerable to disease while they mature into adulthood and immunising against preventable disease is just as important for adolescents as it is for babies and younger children – for their health and the health of those around them,” she said.

“Even though they’re big kids now they still need their parents to take care of their immunisation needs and protect them against preventable diseases such as diphtheria and tetanus,” Dr Lester said.

Advice for parents of babies and children up to age four

Advice for parents of adolescents

For more information:

$1.3 million towards ‘making sick kids better’

The Good Friday Appeal team just sent us this image, and we thought we would share it with you. It captures one of the proudest moments of our year - the annual handover of the Auxiliaries cheque at the Good Friday Appeal.

Congrats to the RCH Auxiliaries, who raised a record amount in 2011/2012, and contributed more than $1.3million towards the 2012 Good Friday Appeal.

This image is Carole Lowen, President of Auxiliaries and Sue Manson, Auxiliaries Coordinator handing over the ‘big cheque’ to Jennifer Keyte, GFA Patron from Channel 7.

About The Royal Children’s Hospital Auxiliaries

The Royal Children’s Hospital Melbourne is supported by a vibrant and dedicated network of Auxiliary groups.  Made up of over 1000 volunteers from all over Victoria, the Auxiliaries are an incomparable force in community fundraising.

Celebrating 90 years in 2012 and having raised over $38 million dollars for the hospital since 1922, the Auxiliaries’ are wholly devoted to their mission:

‘One team working towards one goal – making sick kids better.’

Find out more.

Sunset from the Foundation office on Level 4 of The Royal Children’s Hospital

Sunset from the Foundation office on Level 4 of The Royal Children’s Hospital

Worst sign a money spinner…

Steve Perkins’ In Black and White column in the Herald Sun published this interesting morsel on 19 Apr 2012.  Good on Beechworth for sticking up for themselves! When it comes to charity, sign-writing skills are not the most important issue. And good on Mr Perkins for printing the below slice of humble pie! :)

See the original comment bagging the sign here.

Congrats Beechworth - what a fantastic result!

Silent flashmob makes noise about reading

Yesterday a ‘flashmob’ of staff, parents and patients dropped everything to read for 30 minutes at the RCH to highlight the benefits of reading as an essential life skill.


 
The Royal Children’s Hospital (RCH) is a partner in the 2012 National Year of Reading.  This year is all about children learning to read and keen readers finding new sources of inspiration. It’s about supporting reading initiatives while respecting the oral tradition of storytelling. It’s about helping people discover and rediscover the magic of books.

And most of all, it’s about Australians becoming a nation of readers.
 
For more about National Year of Reading at the RCH visit, www.rch.org.au/education

2012 Cystic Fibrosis Fun Run a record breaker

The Royal Children’s Cystic Fibrosis Research Trust was formed in 2000 by a group of parents in conjunction with Associate Professor Philip Robinson, Director of The Royal Children’s Hospital Respiratory Medicine Department. The group seeks to fund research into cystic fibrosis (CF), a life-threatening genetic disorder that severely affects lung function and digestion.

Research projects are based at The Royal Children’s Hospital (RCH), one of the world’s leading paediatric teaching hospitals, which has more than 300 CF patients under its care.

Last week the trust held one of their major fundraisers, the 6th annual CF Trust Fun Run, under sunny skies in Moonee Ponds.

Over 700 participants elected to do either the challenging 8km run including the now famous ‘heart break hill’ or the leisurely flat 4km walk and run around the river starting and finishing at the Anglers Tavern.

This years event was the largest ever and organisers were delighted that this years event has raised over $45,000, which is another record.

These funds are 100% directed to CF research at the Royal Children’s Hospital which supervises the care and treatment of children with this life limiting incurable disease.

Dr Phil Robinson, the trust’s medical chairman, said the day was a wonderful event made possible by the efforts of the many volunteers and supported by so many in the CF community and local community in general.

“Our trust’s motto ‘Creating a Future’ reflects our desire through research to improve the lives of people with CF and this wonderful amount will help us in our continued push to achieve this”, Dr Robinson said.

Details of further fund raising events organised by the trust can be found on the trusts website

About Cystic Fibrosis

Cystic Fibrosis (CF) is the most common life-threatening inherited disease in Australia. It affects 1 in 2500 children and 1 in 25 people are carriers of the CF gene.

CF primarily affects the respiratory and digestive systems, and patients generally suffer chronic lung infections.Many suffer complications such as diabetes and osteoporosis, and many ultimately require lung transplants.

CF is currently incurable however 80% of those born with CF this century are expected to reach their 30th birthday.


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