The Royal Children’s Cystic Fibrosis Research Trust was formed in 2000 by a group of parents in conjunction with Associate Professor Philip Robinson, Director of The Royal Children’s Hospital Respiratory Medicine Department. The group seeks to fund research into cystic fibrosis (CF), a life-threatening genetic disorder that severely affects lung function and digestion.
Research projects are based at The Royal Children’s Hospital (RCH), one of the world’s leading paediatric teaching hospitals, which has more than 300 CF patients under its care.
Last week the trust held one of their major fundraisers, the 6th annual CF Trust Fun Run, under sunny skies in Moonee Ponds.
Over 700 participants elected to do either the challenging 8km run including the now famous ‘heart break hill’ or the leisurely flat 4km walk and run around the river starting and finishing at the Anglers Tavern.
This years event was the largest ever and organisers were delighted that this years event has raised over $45,000, which is another record.
These funds are 100% directed to CF research at the Royal Children’s Hospital which supervises the care and treatment of children with this life limiting incurable disease.
Dr Phil Robinson, the trust’s medical chairman, said the day was a wonderful event made possible by the efforts of the many volunteers and supported by so many in the CF community and local community in general.
“Our trust’s motto ‘Creating a Future’ reflects our desire through research to improve the lives of people with CF and this wonderful amount will help us in our continued push to achieve this”, Dr Robinson said.
Details of further fund raising events organised by the trust can be found on the trusts website
About Cystic Fibrosis
Cystic Fibrosis (CF) is the most common life-threatening inherited disease in Australia. It affects 1 in 2500 children and 1 in 25 people are carriers of the CF gene.
CF primarily affects the respiratory and digestive systems, and patients generally suffer chronic lung infections.Many suffer complications such as diabetes and osteoporosis, and many ultimately require lung transplants.
CF is currently incurable however 80% of those born with CF this century are expected to reach their 30th birthday.